boy oh boy

Well I did not intend to take so long to write this next blog, nor did I intend for it to have the content it will have. You see when I left work on maternity leave I had a list of things to do – one of which was to blog about the final stages of my pregnancy –  being that I had 4 weeks off before baby was due I figured I had plenty of time.

Turns out our little bundle had other ideas giving me just 1 day off work to clean the house before making its very fast unexpected arrival into this world. More on that later.

The final half of my pregnancy went just as smoothly as the 1st half. I was finally one of those bellies walking around the supermarket! I enjoyed lugging my belly around, I wasnt at any point unbearably uncomfortable and managed to avoid swelling and those other horrible side effects. All check ups with our Obstetrician were spot on, there were areas of visible scarring, however this was minimal and didnt seem to effect the growth of our baby – of which we did not know if it was a boy or a girl. It wasnt until I was 30 weeks pregnant that I finally started to relax and believe that we were going to have a baby. It was at this point I really started to relax, let myself fully believe and get excited. I had finally found confidence in my body again, it was finally working as it should. I carried well, I had no complaints only total gratitude. I was aware however that I was now that pregnant lady hiding around corners serving as a horrible reminder as to why some other beautiful lady woke up just a little bit sad that morning.

This brings me to Easter weekend, Easter Friday to be precise. It was my 1st day off work and I was looking forward to the next 4 weeks of pre-baby maternity leave, setting up the nursery, meeting people for coffee, filling the freezer with baking, taking afternoon naps and even more so having sleepins!!! I spent the day cleaning the house (being 36 weeks pregnant it really did take all day). We were having friends over for dinner that night and my h-band and I had discussed the fact that he probably should make this his last night of enjoying wine with his dinner for a while as D day drew near. Well enjoy it he did, he well and truly enjoyed the wine that night and the whisky and I think even the beer. Dinner was so enjoyable, alothough I was feeling a little exhausted. I had some slight tummy discomfort during dinner (which funnily enough was curry) however I just put it down to eating too much as it wasnt pain I was just a little uncomfortable.

At 2am with my husband passed out on the couch I woke up in bed with my waters breaking. There was no mistaking it, this was deffinatley my waters (no one prepared me for the amount off liquid that was stored up in there). I knew I had to handle my h-band with care, he was in for a shock of a life time and I was pretty confident he was not going to wake up sober. So I very gently woke him up and advised him my waters had broken, to which he told me I had wet myself and to go back to bed. Once I had finally convinced him the water all through the bed and all over the carpet was not urine I called our Obstetrician. I will cut a very long story short by saying he told me to get some sleep and that nothing was going to happen over night, we would talk in the morning. Well nothing happened for 2 hours, but sleep I did not. At 4am after I had had a shower, done the ironing, packed the hospital bags, paid some bills and was sitting on the couch catching up on Coronation Street I started to get very mild period pain which I noticed was rolling around every 3 minutes. I called our Obstetrician who again told me to relax and go back to bed and call him in the morning. Well by 5am my mum was on her way over (a blessing and a necessity being that my h-band wasnt able to drive), my husband was calling our Obstetrican to tell him we were leaving for the hospital and my contractions were 2 minutes apart. By 5.15am we were in the car, mum driving like a mad thing while my h-band timed my contractions that were now 1 minute apart with a 40 minute car journey ahead of us. The pain was completley manageable and while I felt my baby was imminent it was not what I had expected of labour so did wonder if infact this really was it.

Funnily enough our Obstetrician didnt make it to the hospital in time, it was when my h-band called him to let him know we were leaving for the hospital he told him he was actually on Easter holiday, around 3 hours drive away. When my husband very subtly told me this in the car I think he expected it would send me into crazy lady territory. To be honest I really suprised myself in the whole situation. With the possible complications that could arise during this labour, with my history and already hightened anxiety I would have thought that the fact that this baby was arriving 4 weeks early and my Obstetrician who knew all about my AS was now not going to be at the hospital to meet us would have sent me into a total panic attack. All I can say is that its like something took over. I listened to my body and kind of went into an internal state (I do realise how totally cheesey that sounds, 1 step away from birthing in a forest right).

40 minutes after arriving at hospital at 6.49am on Saturday 15th April our son was born, with my husband on one side, my mum on the other and a very calming Irish midwife between my legs. I wish I could relay this beautiful soul moving experience but to be honest with you my body took over and I was left in shock. It happened so quickly I only have a very vague memory of our birth. He was 4 weeks early but he was healthy and he was perfect. Our Obstetrician walked into the labour room sometime after our son arrived (I have no concept of time), I wanted to yell “we did it”! We hadnt completey done it, I had retained placenta which is a common side effect of Ashermans Syndrome and something we suspected may happen so off we went to theatre. Leaving my brand new little family to go into surgery was the hardest part of it all. I knew my son was with my husband so I was not worried I just wanted to be with them.

My body carried my son for as long as it could and for that I was grateful as it had done an outstanding job. Our Obstetrician said he was impressed I had carried him for that long. Although my uterus is a million times better than what it once was its by no means a picture of perfection. We spent a week in hospital before heading home. I had to pinch myself every single day, was this really my son, was our time really here. We had done it, we had travelled our path and we had been rewarded with this perfect being, words cant explain the pure appreciation I felt. Whilst I have not forgotten the heart break we have experienced I know without doubt we are the luckiest people alive!

two lines

It was Friday morning and here I was sitting at my desk at work balling my eyes out (thankfully in the office alone), for absolutely no reason, I was just emotional. I sat there thinking, what on earth is wrong with me. I back tracked through my week. On the Friday week prior I had cramping and spotting telling me AF is on her way, on Wednesday night I couldn’t even finish my glass of red wine while I struggled to eat my curry, at boot camp that morning I didn’t know whether I was going to pass out or vomit and AF hadn’t fully come to the party.

I left the office on a work errand and before you know it I found myself in a random chemist pulling a pregnancy test off the shelf, something in me made me do this however I can tell you not one part of my conscience self actually thought pregnancy was a possibility. We had had a 3rd miscarriage about 2 months prior while we were on our fertility holiday, it was early and my body got rid of it naturally so it was, believe it or not, a slightly positive experience, it meant my body was working as it should when it wasn’t really working as it should if you know what I mean.

I came back to work and did the test, 2 lines! These lines were different to any double line I had ever seen with my previous 3 pregnancies, these lines were bright, thick, instant and dark. I was absolutely stunned, I knew not to get excited by these things but this one did have me in a little bit of shock. I called my husband who was also at work. Now had I have actually thought I would get this result I would have waited and taken the test at home. He was equally stunned, I hadn’t even said anything about how I was feeling so he had no clue at all! We ended the conversation with “oh well guess we will just see what happens”. The most part of me expected to start bleeding over the weekend and miscarry so I left calling my specialist until the following week if there had been no change.

The weekend passed, my back was killing me, my boobs were sore and all spotting had stopped. I called our Fertility Clinic. I was still well aware of the fact this could end in miscarriage at any time and as we were so close to our IVF I was concerned if they knew we had conceived (even if we miscarried) we would be taken of the list for Public Funding. I called the nurse and asked the hypothetical question, “if we got pregnant and miscarried would we still stay on the schedule for IVF” she said absolutely, due to my history I wouldn’t get removed from the list until / if we hit the 2nd trimester. So I told them, I was pregnant.

Blood tests confirmed a healthy pregnancy, there was no jumping for joy in our house but there was definitely optimism. Knowing we still had IVF up our sleeve made this process so much more bearable. Dr Awesome had been away doing Aid work (does he get any more awesome), so we hadn’t spoken to him. One Tuesday night at around 9pm we get a call, it was him. He had looked though my notes as soon as he returned and saw my pregnancy. He had me straight into his office that next day for a scan, we must have been 6 weeks.

It was not long after this I started bleeding, heavily and passing tissue. The 1st time this happened we were on our annual girls weekend. I can tell you I shut that party down pretty quickly. I was convinced I was miscarrying and I’m pretty sure it was the general feeling among the group. I went home that Sunday afternoon, feeling sick to my stomach to tell my husband the baby was no more, we cried and we were angry. When the bleeding started I had contacted Dr Awesome and he had scheduled me for bloods that Monday, low and behold bloods showed a healthy reading and baby was okay. I bleed from week six to around week nine which I now know is a common happening in post AS pregnancies. Not long after that we saw the little heart beat. The 1st time we saw a heart beat was just the most amazing feeling, we had never seen a heart beat, just a lifeless sack. We feel instantly in love, I wanted to protect this little blob with all my life. Dr Awesome saw us every week  during the 1st trimester giving us scans each time and all at no charge, which I can tell you was an absolute life saver for keeping my anxiety levels at a manageable level!

When we were 10 weeks pregnant Dr Awesome passed my care over to an obstetrician who he entrusted with his own daughters, I cried as I hugged him. I was so happy to be leaving his office and start visiting another however I was so sad to leave his care, I had found so much safety in him and he was a friend. In a really nice way I hope like hell I never have to see him on a medical level again!

So here I sit with my belly punching into my desk and an alien like force kicking me from inside out, we are 25 weeks pregnant. I am still full of hesitation (hence why I have not posted this earlier), I am still very weary of getting ahead of myself. I take non of this for granted, and I’m shitting myself it will all end in pain. But its all part of it, I have so far had an uncomplicated pregnancy (aside from the very early scares). Our Obstetrician says if this 2nd half is as good as the 1st we are doing well. I cant even express how grateful and thankful we are to be in this position. We were weeks away from starting IVF! My h-band and I often look at each other and just say “how the hell, is this really happening”.

The fear of loosing this pregnancy brings with it irrational anxiety. During pregnancy your body changes, there are always new aches and pains and feelings, and with each one comes total over analyzing, ‘what’s that, somethings wrong, what does this mean, why do I feel that’. Don’t get me wrong, I know the importance of staying calm and rested for this baby. I’m not rocking in a corner or pacing the lounge at night I just think into things a little too much. I think its a natural response being what we have been through to get here but ill be glad when we are holding our little Butterbean safe and sound in our arms.

We have so many people to thank for being in this situation, mainly Dr Awesome of course but for me my husband, for his patience and never faltering support, he is a gem and I know some men would have struggled with everything we have been through. He never stopped making me laugh and he never stopped loving me……. lets hope the same can be said after a week of no sleep lol.

 

 

 

fertility holiday

Well well well its been some time huh! I wont apologise because my lack of blogging is a good sign for me. You see I have been knee deep in enjoying life with no fertility treatments, something I have called my “fertility holiday”. No tests, no treatments, no appointments……. bliss!

I found my balance, while yes I still think about being belly-less every day that passes I can kind of push it to the side knowing we have a plan in place. I was not on the roller coaster because I have not been anxiously waiting & hoping every month for that BFP. I stopped tracking my cycle, I was not counting down the days. My h-band and I were not being told when and how to “enjoy our marriage”.

I have been the happiest in these last 6 months that I have been in the last 4 years and I strongly feel I can say the same for my husband. Life feels good. which ironically makes for a bloody boring blog!

The “pre-tests” for IVF have started with blood tests and specimen samples along with the paperwork to fill out. One thing we have been grateful for is the fact this is all publicly funded. I am in chat groups with other ladies from around the world who on top of the emotional pressure also have to deal with the financial burden or the joy of liaising with insurance companies.

I am so grateful for this “fertility holiday” before heading into IVF. I am so much stronger and more prepared than I was 6 months ago. Of course we are open to the fact that this is not a sure fire thing, we have a world of possibilities in front of us but we are ready!

 

the incredible hulk

Throughout my previous blogs I have made reference to fertility drugs, specifically Clomiphene also known as Clomid. Clomid is a small pill taken for 5 days generally from day 3 or 5 of your cycle. In basic terms it sends messages to your brain, causing the pituitary gland to release hormones needed to stimulate ovulation, aiming to make your body throw out eggs left, right and centre.

All of the Clomid cycles I have completed have been monitored by my fertility specialist which is standard procedure, these included blood tests before ovulation, follicle monitoring via internal scans in order to time intercourse to the day and blood tests after ovulation. I have done 6 of these cycles, each time having outstanding results but due to my AS all were unsuccessful. Unfortunately someone close to me is about to have their own experience of Clomid (I say unfortunately because I wish she wasn’t going through what she is going through not because Clomid is such a horrible experience) and I have been in two minds as to whether I should share this, I don’t want my experiences to influence her thoughts or perceptions.  Everyone reacts to things differently. For me it was a roller-coaster of out of control emotions and one I can look back at and laugh and cringe all at the same time, sometimes I wonder how I haven’t been served divorce papers yet! I hope if someone is going through something similar with out of control emotions they will read this and find comfort in the fact you will pop out the other side and life will still be as you left it and you will be smiling.

I will be the 1st to admit I can at times have a short little fuse, I thought I had anger issues until I experienced Clomid. WOW! My h-band will back me up on this, I was a total head case. I would be as sweet as pie one minute and totally flying off the handle the next, slamming doors, crying hysterically thinking the world was ending. And you know that old ‘I know I’m being ridiculous but I cant stop myself’ situation, where you get even more angry and upset with yourself because you cant control it, yep that was me. The anger that built up in me from no where was scary, hence my nick name Hulk. My husband and I would use it as code, every cycle when I could feel the green in me starting to breakthrough my clothing I would simply say “hulks coming” he knew to take cover for a couple of days. I also used a picture of the Hulk as my screen saver on my phone so every time I looked at it I mindfully kept myself in check (that was actually a really helpful tool). I would cry literally over spilt milk. I remember one time I found myself sitting outside in the rain balling my eyes out in my PJ’s, I cant even tell you why or what it was about. If anyone had have happened upon me in that instance I think I would have been swiftly relocated to somewhere with padded walls and locked doors. Thank god I have the ability to laugh at myself!

Although this lack of control on my emotions was from my option the worst part it wasn’t the only down fall of this treatment. One morning (clearly not during a hulk episode) my h-band kindly pointed out that “perhaps I should make a trip to the shop and get something to sort that mo out” after laughing hysterically and pretending that I couldn’t give too hoots I ran and looked in the mirror and sure enough there it was, a shadow hovering above my top lip, great!

There are physical side effects but they are reasonably minor and don’t hang around for too long, Clomid basically makes you fat, sore, hot and not able to sleep. But the whole fat thing is purely just bloating and its away in a few days, generally at the same time as the lack of emotional control disappears so life starts to look manageable again.

Everyone would have different experiences on this treatment and whilst I’m glad I don’t have to take it anymore I’m shitting myself for what will happen if I get to the IVF stage and all the drugs they throw into you, I may have to build an underground bunker to hide in for a week or so, i’m not sure anyone will be safe otherwise!

distraction therapy

I’ve been feeling a little disheartened lately, hence the lack of blog. I feel ashamed and awkward, I feel like I am being weak and pathetic, that people must be thinking “gees girl get over it”. Of course no one has said anything of the sort and I continue to get amazing support, I just feel like everyone’s lives are flowing along and mine is just stuck. And surely that comes down to me right? Its up to me to un-stick it but how? The one thing that I know will get my life un-stuck I have no control over so I must need to re-focus, move on regardless but that means reassessing my life and what I want out of it, how do I do that?

I have tried to understand or find reasons as to why, as a very good friend of mine puts it, “some ladies just have to lay their knickers on the bed and get pregnant” and others are not so lucky. I throw myself between the fact that shit happens for no reason, to perhaps its payback for something horrible I have unknowingly done at some point during my existence to the thought that I’m cashing in some shitty years now meaning I have some amazing ones ahead of me (I like that one the most).

I do believe in fate, that everything happens for a reason (lots of people tell me this is fate) but I’m struggling to see the reason, if it was to teach me a lesson about patience, okay lesson over already. If its to teach me about the women’s anatomy consider me taught, I know way too much about my body now, if its to strengthen my marriage I can honestly say its unbreakable, if its to weaken my friendships and make me a recluse job done!

When a situation is out of your control and seemingly out of anyone’s control its frustrating, it doesn’t matter what you do, you cannot fix it so you have to learn to live with it until something happens, in our case until we get the BFP (big fat positive) or until we make a decision. Until that point a huge part of your life is on hold and totally swallowed up by the situation.

I have used the therapy of distraction, some distractions have hung around, some have not. My distractions are extremely varied and in hind sight make me laugh! I have a box of candle making equipment in the garage that needs to be binned (I did make some candles and some very unfortunate people got them as gifts), I have committed to 2 – 3 years of time consuming study which I regret on a daily basis, I have a coloring book that doesn’t even have 1 completed picture, I keep signing up to runs and sporting events (which is of course a good thing, although my knees don’t agree). But while I enjoy all these new distractions I try it never stops the mind or makes the time go faster, it doesn’t give me the answers to my questions.

So what do I do? Keep living the way I’m living and feeling the way I’m feeling? Accept it and move on? I know we have IVF at the end of the year if things don’t happen before then but we cant put all our hopes on that, there is still no guarantee. Wish I just knew what was going to happen either way so I can move forward instead of standing still.

 

 

memoirs from mum

The last three years have been quite a journey for my daughter and her husband.

I remember when my daughter lost her first baby. I knew what she was feeling; I had lost a child too. I knew she would be grieving for this baby and was so excited for her when she very quickly fell pregnant for the second time.  I began to worry when she lost the second baby.

And then everything changed, we wondered why and thought it strange.

It seemed as they just had to look at each other for the first two pregnancies and now nothing. Abnormal periods, lots of pain and no baby. Although for us it seemed to be a point worth investigating it appeared to be of no concern to the various medical professionals they saw along the way. It wasn’t until the fertility specialist came on the scene that they began to get some answers and started making sense of where they were at.

I remember how relieved my daughter was when they finally had a diagnosis and she understood that her inability to conceive was no fault of hers.

I am grateful that she has always willingly shared her journey with me, I listen as she  talks about her frustrations, disappointments’, and sadness. About her desire to have a child and about the possibility of not being able to conceive.

I listen and feel so helpless.  This is one hurt a mother – or anyone else – for that matter, cant fix.

My daughter is an adult now with a wonderful husband who stands right beside her. When she needs me, I am here.

Mostly I think it’s about listening, encouragement, and just being there.

While I have no doubt that baby, baby, baby is in the fore front of her mind constantly, we have had lots of precious mother and daughter time.  Just hanging out – movies, coffees etc.  Doing normal everyday things. Although we have never discussed it I think we both agree that there has to be a balance in life and that although pregnancy is right up there you still need to enjoy these times together.

I have seen her struggle with her own failure to conceive and the genuine joy she feels for her friends as they begin their families.

I have seen how her friends struggle with not quite knowing what to say or how to be there for her.

I see how my daughter trusts her intuitions about what is happening in her body and has been proactive about seeking answers. There were several times when she felt treatment had not been effective and went back for more tests instead of waiting the three months or so that was often the advice after treatment.

She has been right every time and this has saved precious time as she travels this path of infertility.

There are times when she retreats from the world, when our daily contact is reduced to a single word text reply or we have a very short conversation or no response to my calls and texts at all.

Or there is the other extreme where it’s all go, when she is very busy, bubbly and lively.

Then there are the fertility treatments – not much fun………….. she is up and down –  all over the place.

One extreme to the other – but then that pretty much sums up this journey.

Pregnant – Miscarriage!

Pregnant – Miscarriage!

Diagnosis – Treatment

Scarring all gone – Some scarring left behind

All scarring gone – Suspected Endometriosis …………………….

We had a laugh the other day when she joyfully told me her period had arrived.

Ironic when you’re trying to get pregnant and you’re happy when your period comes.

It was the first normal period she had had in three years!

I know my daughter would agree with me when I say that along the way there have been some wonderful blessings. The genuine love and concern so many people show. The support she has at work and the wonderful fertility specialist she now has. One day, baby or no baby I’m going to give that man the biggest hug!

He has been a rock for my daughter and her husband in a way no one else could. He has provided professional, honest, compassionate and practical support.

And then there is her husband, he is right there with her, every step of the way. Generally speaking it’s been my experience that men are doers , not talkers and it must be so hard to have to watch all this unfold and not be able to fix it. I’m sure at times he must feel very lonely, disappointed and angry at the situation.

The outcome of this journey is still uncertain but I’m not ready to entertain the possibility that my daughter and her husband’s dream of having a family won’t come true. It’s looking more positive every day – one day my daughter will hold that precious baby in her arms – I know it.

shopping trolleys not prams

Sometimes I feel like the hunted victim out of the Hunger Games or a lonely gazelle roaming on the Serengeti. Upon leaving the safety of my home there seems to be a gang of new born baby’s and big beautiful belly’s perfectly positioned around every corner just waiting to pounce. Murphy’s law has it that on the days I feel the worst the more babies and belly’s there are out and about serving as a constant reminder as to why I woke up just a little bit sad that morning.  I don’t want to sound like a heartless bitch, obviously I LOVE babies and take my hat off to pregnant ladies but sometimes (actually all the time) I just want to escape the reality of my inability to do what these ladies do so well.

One thing everyone in my position will have is a loaded answer all ready for the questions,  “oh no babies yet” or the “so when are you guys going to start your family?” and the classic “don’t leave it too long”. My answers have varied from “we have decided not to have children” which I learnt prompts more questions than silence, so my more common answers are “oh we are too busy for children, we will when we have time” and the classic and more honest “oh when the time is right”. I personally leave the house on guard prepared for these questions because the last thing you want is to burst into tears in the supermarket while spitting out a bullshit excuse as to why you are not pushing a pram, straight jacket alert!

In saying that I have shed many a tear in the supermarket (have you ever noticed how many kids there are at a supermarket), one day in particular I bumped into two ladies I knew, both beautifully pregnant and happy, boom boom one after the other, I could not keep myself together. I left the trolley where it was, headed straight for the wine isle and left with wine bottle firmly gripped in my clenched fist.  Another time I actually had a lady place her hand on my belly and congratulate me on my pregnancy and no, not because she had heard a rumor but because she genuinely thought I looked pregnant! I was actually having a really good day, I had an xmas shopping list that I was ticking off and was absorbed in tasks, this one caught me well off guard. I wanted the floor boards to open up as I am sure she did also, poor lady she must think me very unstable and obviously a little fat…….. more gym less wine this means!

On the flip side to this there are the odd moments when i’m walking through the supermarket and I see those little shits fighting to get lollies in the trolley, following through with a full blown tantrum when they don’t get their way, or the kids that are screaming the place down and mums able to just ignore the ear piercing volume and I think “oh thank god i’m not in your shoes love”.

lucky socks and greenstones

I’m back, no I wasn’t hibernating from this blog, unfortunately I had an assignment to do so that took priority (yes study, just part of a very long list of distractions I have given myself).

I will pick up where I left off from my post “trust your instincts”, this is the other part of the informative yet somewhat boring stage of this blog.

We had our diagnosis thanks to our instincts and Dr Awesome listening to us. What I needed now was surgery to remove the adhesion’s, this is done by an operative hysteroscopy, just like the original hysteroscopy I had but adding in general anesthetic and some micro tools. Of course we wanted Dr Awesome to preform this surgery but the cost of doing so privately was beyond us, I was referred back to the original hospital that did the D&C’s and the miss diagnosed tests. This time I did my research on the surgeon I was assigned to, thankfully I had been listed under the head Gynecologist and his side kick so while I wasn’t being operated on by my preferred Dr I got the best on offer. I will never forget our 1st meeting with the Surgeon, my husband and I called him Dr Smiley, he smiled the whole time and while I realize he was being pleasant it looked as though he was going to burst into song and laughter at any minute. Even when he was explaining the possible bad outcomes of the surgery he had this ridiculous grin on his face while i’m sitting there in tears. When ever he explained anything to us about the surgery he would look at us with this big smile and say “so what do you think about that then” I wanted to scream at him and reply “I think its fukn shit, that’s what I think about it”. He must have asked about 10 times during a 20 min consultation. I eventually said something along the lines of “well it really doesn’t matter what I think, I have no idea about this surgery, your the professional, just do what you need to do”.

So after a few more months passed we got the surgery date, so on went my lucky socks and my greenstone and in we went. I was nervous of what I would wake up to but being I had had general anesthetic 3 times already I wasn’t worried about that side of it. Some people don’t like it, I really don’t seem to mind it at all. I wouldn’t say I love it but its a nice feeling those few seconds drifting off. Anyway the surgery took 1.5 hours, longer than they expected. I went home that evening to the comfort of my own bed and the love of my h-band and dog. The pain post surgery was very manageable, probably the most discomfort was the ache in my pelvic bone area, sounds weird I know but i’m guessing from it all being clamped open for so long? I don’t know but it was just an achy bruised feeling. In the grand scheme of things it was fine. I had a couple of very low key days with cramps but it was a very quick recovery. It must have been around 1 month post surgery we went back in for a follow up appointment with Dr Smiley, between you and me he did say that he couldn’t believe the Asherman’s hadn’t been picked up during my 1st hysteroscopy with his colleague, it was so glaringly obvious. He showed us before and after pictures, he was very pleased with his work and it certainly looked like he had done a great job. With this surgery its so delicate and the risk of accidentally cutting through your uterus wall is very high. The surgeons are guided by a camera and using tiny tiny micro scissors they cut away the adhesion’s. Not only do they need to cut through the center of them to separate the walls of the uterus they also need to cut away all the left over bits of flesh flapping about being VERY careful to not destroy the lining in the process. I can only imagine its a fidley bloody job and as I say what he did do was done very well. He finished the appointment saying “okay well good luck, if your not pregnant in 6 months time make an appointment to come back and see me”. I could not believe after everything that had happened he actually thought a. that its correct practice to not do a follow up hysteroscopy or HSG and b. that he thought I could actually do that, after the already years of crap! I walked out like a stunned mullet to be honest. I should have said “no, I want a follow up test” but again when you are not the professional you doubt your thoughts.

So back we went to Dr Awesome with all my surgery notes who without saying anything I could see on his face he also thought it odd there was no follow up scheduled. So I monitored my next few cycles, while there was a definite improvement on my periods it still wasn’t right. Along with Dr Awesome’s support we went privately for another HSG. Sure enough it showed up a reasonably large section of adhesion’s Dr Smiley had missed. I was devastated. The thought of having to go through all this again!

After some guidance we figured out that if we got transferred to the hospital that Dr Awesome worked out of he could pick up my case and preform the next surgery. I wrote a letter stating my case and pleading with my current hospital to release me from their care and request Dr Awesome handle my care. To be honest, with my case I was pleading there was not a lot of room for them to disagree. Part of me felt bad, I was basically saying they were not good enough but I just felt we had been let down time and time again, we were talking about the likely hood of us having a family, it is so important to us so we couldn’t take it lightly! We needed confidence and we weren’t feeling that.

As you can imagine it took some time for the transfer to go through and my next operation to be scheduled. But once it all went through I was being operated on by Dr Awesome and it wasn’t costing us a penny. I felt so comfortable and confident and safe.

So again on went the lucky socks and greenstone. In order for him to get a clear opening I was given these pills about an hour before surgery to open up my cervix. I had had a small dose of these before my D&C’s but nothing like this. I can only explain it like it felt like someone was ripping my pelvis apart and all my insides were going to fall out. I was in so much pain, they were pumping morphine into me and it wasn’t even touching the sides of the pain, by the time I went in to the surgery I was as high as a kite. I felt like a big girls blouse but holy crap, is that what child birth is like? I wonder if the pain was worse due to the adhesion’s and I also wonder had Dr Smiley used this method to open up the access perhaps he wouldn’t have missed the section he did.

When I came around from surgery, all I could feel was that immense pain, it was still there, I screamed as I woke up instantly clutching my pelvis. Luckily the nurses were there throwing more morphine in my arm quicker than I could register what was going on. Needless to say I didn’t go home that night which I think my husband was relieved about. In my mind I thought I was going home as soon as I saw him but the reality was I was so high on pain killers I couldn’t walk let alone go home. He took one look and me and said “ahh na your not coming home with me”.

Dr Awesome called my husband straight after surgery and told him surgery had been a great success and he was so very happy with the outcome. We scheduled a follow up with him at the fertility clinic a few weeks after surgery. We were happy and I was excited at the thought of no more surgeries and no more belly-less me!

power of the mind

The mind is a scarily powerful thing, sometimes too powerful for my own good! I cannot tell you how many times I have convinced myself I was pregnant. There is a very fine line between being positive and getting your hopes up and those lines get blurred so easily, regardless how much the realistic self tries to control your thoughts.

Its like a battle that goes on in your head (and only in your head, god forbid if you actually voiced your thoughts and exposed your true insanity), the hopeful self sits on your left shoulder and see’s every single sign and even signs that aren’t there and puts it down to pregnancy while the realistic self sits on the right shoulder and explains away every irrational thought.

Towards the end of the two week wait (2ww) I become obsessed with the bathroom. Not because I love spending time in there, but because the hopeful self wants to prove that Aunt Flo (AF) isn’t here, of course not because I’m pregnant, but the realistic self wants to get the pain over and done with because it knows its coming. There have been months during this 3 years battle that we have not be ttc, mainly when I have been in between surgery’s and those months are bliss, of course the sadness of being baby and belly-less is still there but you just haven’t boarded the roller-coaster that month so there are no shattered expectations. Then there are the months of endless trying on our own and the months of trying with fertility drugs. We have just completed our last cycle using fertility drugs and once again I have been smashed back down to reality. This was by far the hardest reality check thus far. To me this was the last chance saloon before IVF. I want to scream, WHY THE FUCK has it not happened. I have a uterus that is apparently scar free, I had a wonderful lining and 2 massive follicles which ovulated and my h-band has Olympic swimmers, what more do we need!!!!

While I lay in bed this morning balling my eyes out my h-band made me laugh out loud, only he could do that.

True to form I will now go into hibernation like a bear in winter, however I will surface just long enough to buy a new dining table.

 

 

 

trust your instincts

This post is going to be a pretty detailed affair, I will try my best to keep from overloading you with information, but this is where I share the reasons for me wanting to create awareness about AS. I will explain in as much detail as needed how something I feel that was so obvious went un-diagnosed.

Just over a year after our first miscarriage we made an appointment with the leading Fertility Clinic in our city. This is the positive part of this blog so I’m happy to start with this. We got so incredibly lucky, it just so happened the specialist we were scheduled with has been our saving grace. Don’t get me wrong, I believe all the specialists at this clinic are undoubtedly fabulous however the pure gentleman that we got assigned to, well we cannot speak highly enough of this man, and I say this, sitting here still baby and belly-less. You see if our ultimate goal is not reached my husband and I will know that our specialist has done absolutely everything he can to try and make it happen, there will be no stone left unturned and that is an amazing piece of mind to have in this situation. We have total faith in him.

During our initial consultation with DR Awesome (I will call him this for the purpose of this blog) he asked the standard questions, organised the routine tests of bloods and sperm. He also did an internal scan during that consult (my internals not my h-bands) which he picked up what he thought may have been a fibroid. Dr Awesome suggested a Hysteroscopy. Now being in NZ we have public health care and private health care. The services provided by Dr Awesome and the Fertility Clinic were on a private level so we paid for this ourselves, however the cost of investigative procedures, treatments and surgeries privately were beyond our situation and we had only just started the journey so weren’t ready to pour our house fund into it just yet.

Dr Awesome referred me back to my local hospital (the same one that preformed both my D&C’s), and requested they carry out a Hysteroscopy. A Hysteroscopy in layman’s terms is where they set you up just like you’re having a smear test, the Dr insert’s a tube through your cervix into your uterus that pumps in fluid and then inserts a tiny camera. The purpose of this is to have a good look inside the uterus and to check the tubes are clear and visible.

A good few months after the referral I was called in to my local hospital. The Gynaecologist that did the hysteroscopy had a wonderful nature, and great bedside manner, I don’t wish to talk ill of her but this really is where the failing started, well I guess the failing started at the first D&C but I digress. As this was just an investigative Hysteroscopy (not an operative one which we will talk about later) I was wide awake and felt everything. My husband was sitting beside me and we had two nurses fussing over me, all the staff were lovely and so caring. The screen was set up beside the bed so we could all see that the camera could see. Once she was inside my uterus there was no looking at the screen for me, the pain was immense, my eyes were full of tears and I was squeezing my husbands hand to death. I did not want the Dr to abort this mission otherwise we would have had to re-schedule and do it under a general anesthetic (that would have meant another couple of months wait). I just wanted to get it done. I am unsure if the pain was worse than expected being that my uterus was full of adhesion’s or if its always that unpleasant.

The Dr couldn’t access half of my uterus and her initial thought was an under-developed uterus. To confirm her findings she sent me for an MRI. Being this was all done under the public system it was another month or so before I got the MRI. This was a long time to sit on this bit of unconfirmed information. My fingers did a lot of googling during these months.

The MRI showed nothing out of the ordinary, I was sent back to the Gynaecologist that preformed the Hysteroscopy who decided that as nothing was amiss on the MRI my uterus was fine.

I can now understand her reasoning for getting an MRI and why nothing abnormal showed up. You see the MRI shows the shape and formation of the uterus (which she thought was the problem), what it doesn’t show is what is going on inside the uterus. I remember being so confused, my emotions were all over the show. On one hand yay I don’t have a half developed uterus, but on the other hand I have spent the last 9 – 10 months going through these motions and still have no answers. We are back at square 1 again.

This is the part that I am most angry about, not the initial D&C that I believed caused the damage. I am of course upset about that however I do understand errors occur, the suction was set too high, hey who knows maybe I have an extra soft uterus or something. Although I do struggle with the fact that the Dr who performed the D&C would have gone on to do a million more no doubt, without a 2nd thought about me, yet that one move has caused so many tears, so much heart ache and pain and frustration, it has literally ruled the last 3 years of my life and she is none the wiser.

Regardless, my real frustrations come in here, the Gynaecologist who performed the Investigative Hysteroscopy had 3 massive flashing lights blearing at her. 1. I had explained the change in my cycle since the D&C, the sudden lack of periods, the intense pain and the lack of fertility. 2. She had my notes in front of her, so although my husband and I told her about the D&C, the suction being too high & the concern of damage it was also written in my hospital notes. 3. She couldn’t access half of my uterus when she was in there!!!! Okay so the MRI came back clear, of course it did, the outside of my uterus was fine, she should have read those 3 blearing signs and kept investigating. Before we even went to that Hysteroscopy my husband and I both felt that the way my body had changed post the D&C’s it had to be related, we explained all our concerns to the Dr. I had not even heard of Asherman’s Syndrome at this stage, if I had I would have pushed for more tests…………. but then I’m not the Dr am I. I trusted she knew what she was doing. I pleaded my case and she disagreed there was anything more to it.

So the report goes back to Dr Awesome stating that nothing untoward was discovered and there is nothing of interest. My fertility issues are flagged as unknown infertility.

We go on to do 3 rounds of Clomiphene with the Fertility Clinic. Clomiphene is a fertility drug that boosts a women’s ovulation. Your cycle is monitored by blood tests and scans. Fertility Drugs, like many drugs out there, have some interesting side effects but I will talk more about that another day.

So after all 3 clomiphene cycles failed the next step was IVF. We met with Dr Awesome and I explained my concerns, I told him how sure I was that there was more to it and that there was something wrong. He listened to us as he always has, he suggested an HSG (hysterosalpingogram). Normally as nothing was found with the Hysteroscopy the HSG would be a waste of time, but we needed more certainty. My husband and I didn’t think twice, we went private for this test, it was the best $930.00 we had spent thus far. An HSG is a radiology procedure where they inject a dye into your uterus (again through your cervix) and take pictures. It is supposed to show the dye filling the uterus and going up and out both tubes. The radiographer called it within 5 mins “you have Asherman’s Syndrome” he said. Once I had cleaned myself up and got dressed he explained it in detail to me and showed me the pictures.

The best way I can describe it is, if you have a deflated balloon the walls of the balloon rest against each other but when you blow it up the walls separate. Well imagine those two walls glued together. That was my uterus. I had an opening at the cervix so the dye could enter but down the center of my uterus in the main cavity there was no dye. The D&C had caused damage and the walls of my Uterus had fussed together while healing. The adhesions were the glue.

Normally the best method in diagnosing AS is the Hysteroscopy, had my AS have been picked up earlier we would have saved a truck load of time and of course money but more importantly we would have saved a lot of tears! I cried so much during these 1st couple of years, the emotional strain really pushed my personal boundaries. I cut myself off from friends and family, I avoided social situations like the plague and I drank way too much wine……. okay so that wasn’t really a bad thing but you get what I’m saying, it sucked! I hated my body and I was starting to hate myself! Throw some fertility drugs into that mix and my husband will be the 1st to tell you it isn’t pretty.

However finally we have our answer, okay so it’s a shitty answer but it’s an answer and we were stoked just to have that. I had finally proved I wasn’t crazy after all, my instincts were right and we could start moving forward.